Reports
This page contains reports and updates about current Chronic Illness Alliance Inc. campaigns and activities.
On this page
Researching the personal impact of epilepsy
Costs of Chronic Illness in Rural and Regional Victoria
Report from Therapeutic Patient Education (TPE) Conference 2006
Travel Insurance Workshop Report 2003
Developing a Shared Definition of Chronic
Illness
Superannuation and Standards
of Living in Retirement
Annual Report 2007
"Findings" Report - Concession Card for People
with Chronic Illness
Survey of Costs
Researching the personal impact of epilepsy
This report was undertaken by the Chronic Illness Alliance and the Epilepsy Foundation of Victoria. It is the result of a consultation with people with epilepsy, their families and carers on how research could improve their lives. People with epilepsy argued they would like research undertaken to inform community awareness programs since community ignorance was a major impediment to their full participation in their communities. The report discusses the social exclusion of people with epilepsy in Australian communities.
Costs of Chronic Illness in Rural and Regional Victoria
This report covers a survey of the health-related costs for households in rural and regional Victoria in 2003. It's findings suggest that many households where there are members with chronic illnesses live in chronic poverty.
Report from Therapeutic Patient Education (TPE) Conference 2006
This report covers some of the papers that were presented at the Therapeutic Patient Education Conference held in Florence, Italy in April 2006. The Chronic Illness Alliance presented three posters at this conference, two of which may be seen on the Chronic Disease Self-Management Special Interest Group pages.
Travel Insurance Workshop Report 2003
In 2003 the Chronic Illness Alliance held a workshop on the insurance issues faced by people with pre-existing medical conditions when they want to travel overseas. The workshop had speakers from the insurance industry, law firms and consumers who had experienced refusal of any coverage. This Travel Insurance Workshop Report presents the discussion from the workshop.
Developing a Shared Definition of Chronic Illness
The aim of this project was to develop a consistent definition of chronic illness among stakeholders in the health system. The resulting report "Developing a shared definition of Chronic Illness", published in Microsoft Word (doc) format (file size is 609kb), was prepared by the Health Issues Centre, the Chronic Illness Alliance and Melbourne University's Department of General Practice.
Superannuation and Standards of Living in Retirement
The Chronic Illness Alliance and the Neurological Alliance in conjunction with Maurice Blackburn Cashman have made a "submission to the Senate Select Committee on Superannuation and Financial Services", published in Microsoft Word (doc) format (file size is 56kb), arguing the need for a review of superannuation laws in regard to people with disabilities and chronic illness.
Annual Report 2007
The 2007 Annual Report of the Chronic Illness Alliance, published in Microsoft Word (doc) format
"Findings" Report
Concession Card for People with Chronic Illness
The "FINDINGS" report published here in Acrobat (pdf) format (file size is 212Kb - please be patient if you are on a slow connection) summarises the Chronic Illness Alliance's report entitled "A Concession Card For People With Chronic Illness". This report contains case studies on how people with chronic illness cope on limited incomes. It argues that if people with chronic illness had timely help, that was not income-based, but based on their needs, they would be better able to participate in their communities.
If you would like to support this campaign, then please:
- print off copies of "FINDINGS" and send them to your friends and to members of support groups (or email them the Acrobat file)
- have a discussion on these issues and ask one another if you know of people like those in the case studies.
- As an individual, or as a group, you may then like to send copies of "FINDINGS" to your local member of parliament, to the State and Federal Ministers of Health and to the Federal Minister of Family and Community Services with a letters supporting the campaign.
The Chronic Illness Alliance thanks the Stegley Foundation for its support for people with chronic illness in this campaign.
Copies of the full report "A Concession Card for People with Chronic Illness" are
available.
Contact Christine Walker on 03 9805 9126.
Survey of Costs
A survey of costs to people with chronic illness who do not have a health care card. Some illnesses are more expensive to live with than others.
We encourage you to read the article by Dr Christine Walker entitled "Some Illnesses Are More Expensive To Live With Than Others."
