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Chronic Illness Alliance

Representing over 40 consumer & advocacy groups on matters of common concern

Reports

This page contains reports and updates about current Chronic Illness Alliance Inc. campaigns and activities.

On this page

Multiple Conditions Working Group Report
Fixing the Healthcare System
Helping people on the Mornington Peninsula manage their chronic conditions effectively.
Consumer Perspectives of chronic disease management and self-management in City of Knox
.
Policy and epilepsy in Australia
Researching the personal impact of epilepsy
Costs of Chronic Illness in Rural and Regional Victoria
Developing a Shared Definition of Chronic Illness
Superannuation and Standards of Living in Retirement
Annual Report 2011
"Findings" Report - Concession Card for People with Chronic Illness


Back to page contents Multiple Conditions Working Group Report

In August 2007, the Committee of Management of the Chronic Illness Alliance in Australia recognised that many people have more than one chronic illness; that when a person has one chronic illness they may be at greater risk of developing other chronic illnesses.  Additionally people with chronic illnesses are more likely to suffer adverse events and medical errors because they have greater contact with the health system than others requiring acute care.  The possibility of error and adverse events increases if a person has more than one condition.


Back to page contents Fixing the healthcare system

Authored by Dr Alexandra Wyke, CEO of PatientView, Fixing the Healthcare System, is an Economist Intelligence Unit white paper, developed for Philips and its new Inside Health website. The white paper’s findings are drawn from a global survey of health professionals.


Back to page contentsHelping people on the Mornington Peninsula manage their chronic conditions effectively

An indepth exploration of consumer needs by the Chronic Illness Alliance on behalf of Peninsula Health 2009.


Back to page contents Policy and epilepsy in Australia

This report was undertaken by the Chronic Illness Alliance on behalf of the Epilepsy Foundation of Victoria. The report discusses the absence of epilepsy in government policies and the implications for people with epilepsy, including the areas of discrimination, employment, welfare and education. The report contains recommendations to redress the imbalance this absence in government policies has created.


Back to page contents Researching the personal impact of epilepsy

This report was undertaken by the Chronic Illness Alliance and the Epilepsy Foundation of Victoria.  It is the result of a consultation with people with epilepsy, their families and carers on how research could improve their lives.  People with epilepsy argued they would like research undertaken to inform community awareness programs since community ignorance was a major impediment to their full participation in their communities. The report discusses the social exclusion of people with epilepsy in Australian communities.


Back to page contents Costs of Chronic Illness in Rural and Regional Victoria

This report covers a survey of the health-related costs for households in rural and regional Victoria in 2003. It's findings suggest that many households where there are members with chronic illnesses live in chronic poverty.


Back to page contents Developing a Shared Definition of Chronic Illness

The aim of this project was to develop a consistent definition of chronic illness among stakeholders in the health system.  The resulting report "Developing a shared definition of Chronic Illness", was prepared by the Chronic Illness Alliance and Melbourne University's Department of General Practice.


Back to page contents Superannuation and Standards of Living in Retirement

The Chronic Illness Alliance and the Neurological Alliance in conjunction with Maurice Blackburn Cashman have made a "submission to the Senate Select Committee on Superannuation and Financial Services", arguing the need for a review of superannuation laws in regard to people with disabilities and chronic illness.


Back to page contents Annual Report 2011


Back to page contents "Findings" Report
Concession Card for People with Chronic Illness

The "FINDINGS" report published here in Acrobat (pdf) format summarises the Chronic Illness Alliance's report entitled "A Concession Card For People With Chronic Illness". This report contains case studies on how people with chronic illness cope on limited incomes. It argues that if people with chronic illness had timely help, that was not income-based, but based on their needs, they would be better able to participate in their communities.

The Chronic Illness Alliance thanks the Stegley Foundation for its support for people with chronic illness in this campaign.


 

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