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Please be aware of unproven remedies using stem cells

Here is a report handed down by NSW Coroner on the death of a patient with dementia following adipose-treatment at Macquarie Stem Cells:


This report calls for ‘legal protection against the exploitation of severely and chronically ill people by purveyors of scientifically dubious “therapies” and that it is ‘disturbing that he (and presumably others) would market this “experimental” or “innovative” therapy for profit to vulnerable and desperate people in the full knowledge both that there is little scientific support for the “therapy” in relation to dementia and that he is not conducting a clinical trial of any scientific standing or worth. The obvious potential for the providers of such purported remedies and therapies to exploit such consumers is great and therefore troubling. So too is the potential conflict of interest between the principle of harm minimisation and commercial medicine.’

Background Briefing on ABC Radio National featured a story on autologous stem cell treatment in Australia.


Chronic Disease Self-Management Special Interest Group dates 2016

All meetings are on a Thursday from 10 am to 12 noon. Venue to be arranged closer to the meeting date but generally in the Melbourne CBD

18 February 2016

21 April 2016

23 June 2016

18 August 2016

20 October 2016

Regional meetings to be notified during the year.

Peer Support Network Dates 2016

  1. Wednesday ,16 March 2016
  2. Thursday,16 June 2016
  3. Tuesday,16 August 2016
  4. Wednesday, 12 October 2016.

Topics and venues to be arranged

Join the fight against antibiotic resistance

NPS is asking all Australians to become ‘resistance fighters’ and join in the fight against antibiotic resistance.

What is antibiotic resistance?

Resistance Fighter Billy

We need you!

The development of antibiotics revolutionised medicine. Conditions such as bacterial wound infections and tuberculosis, once killers, suddenly became treatable saving millions of lives.

But overuse and misuse of antibiotics has made it harder and harder to treat many bacterial infections. Antibiotics are losing their power against illness-causing bacteria.

This is called antibiotic resistance.

You can make a difference

Australians are amongst some of the highest users of antibiotics in the developed world, with around 22 million prescriptions written every year. If at least 35,000 Australians pledge to join the fight against antibiotic resistance this will help bring our use in line with other OECD countries.

So make a difference — join the fight.

How to be a resistance fighter

  • Understand that antibiotics are only effective against bacteria and not viruses — colds, flu and most coughs are caused by viruses and will get better on their own.
  • Treat your flu and cold symptoms and let your immune system fight the virus — antibiotics will not help you get better quickly, and may give you side effects such as diarrhoea and thrush.
  • Don’t ask for antibiotics — instead ask your doctor about the best way to treat your symptoms.
  • If you are prescribed antibiotics ask your doctor about the risks and benefits and always take them exactly as prescribed.
  • Don’t take someone else’s antibiotics.
  • Spread knowledge, not infections — encourage other people to join the fight against antibiotic resistance.
  • Take the Resistance Fighter Pledge and share it on Facebook.
  1. I will not expect antibiotics for colds and flu as they have no effect on viruses.
  2. I will take antibiotics as directed if I am prescribed them.
  3. I will practice good hygiene to help stop the spread of germs.

Remember, antibiotics:

  • Won’t help a cold/flu get better faster
  • Won’t stop a cold/flu getting worse
  • Won’t stop a cold/flu from spreading to other people

Find out more about coughs and colds and why you don’t need antibiotics to treat them.

Want to join up?

Find out how you can join the fight against antibiotic resistance.

NPS Medicine Name Finder Tool

To quote from the NPS Media Release:

“Avoid further health problems by learning what’s in your medicine.

Knowing the active ingredient in your medicine may help prevent serious health complications that occur because of an accidental mix up, the National Prescribing Service Ltd (NPS) is advising consumers.

More than 140,000 Australians are hospitalised each year because of mix ups with their medicines, many of which could be avoided through knowing how to read and understand medicine labels.”

One of the tools provided by NPS to assist people is the Medicine Name Finder Tool. Click on this logo to check it out:

Consultancy Fees for the Chronic Illness Alliance

Workshops and Focus Groups

The Chronic Illness Alliance has considerable expertise in organising, facilitating and analysing workshops and focus groups with a range of health consumers and service providers.

Fees apply as follows:

  • Initial consultation with client agency to establish purpose of undertaking a consumer consultation; most appropriate method of consultation eg workshop, focus group, interviews, (group or individual).
  • Background reading (if necessary) and preparation of workshop materials.
  • Attendance at meetings to review materials, inform clients of progress, participate in related project activities.
  • Recruitment of participants.
  • Development of open-ended questions or workshop materials, including consent forms and ethics approval where necessary.
  • Workshop, focus group facilitation or undertake interview process. This includes tape-recording, and scribing the session.
  • Transcription of tapes Analysis of content and preparation or report.
  • Personal presentation of report, if desired.

Charges of $1400 per day or $220.00 per hour, all inclusive. Single tasks such as recruitment may be negotiated.

Additional charges include: (a) reimbursing the consumers between $40 and $50 per focus group, (b) costs of refreshments and venue hire (c) consumer travel costs (d) additional assistance (e) GST.

Literature Reviews and Discussion Papers.

Examples of recent work undertaken by Chronic Illness Alliance

  • May-July 2014 focus groups on consumers’ views of cardiovascular risk assessment in community pharmacies
  • October 2012 NPS MedicineInsight Focus Groups and Report

Research, reports, discussion papers

The Chronic Illness Alliance has undertaken research projects concerning issues in chronic illness, such as consumers’ needs, policy implications of chronic illness and the role of self-management programs in caring for people with chronic illnesses.

Fees apply as follows:

  • Initial consultation with agency to establish the extent, aims and objectives, and the outline of work proposed.
  • Collection of literature Drafting of review, discussion paper.
  • Presentation of drafts for comment. Inclusion of material based on comments.
  • Preparation of final draft.

Charges of $1400.00 per day or $220.00 per hour, ex GST. Variations according to need may be negotiated.

Additional charges may include cost of research assistant, travel costs.