Cystic Fibrosis

Further Resources

Organisations, including services and resources available

Helpful Resources

Cystic Fibrosis Victoria Inc

Cystic Fibrosis Victoria was established in 1974 to support parents of children with Cystic Fibrosis. Since that time, the organisation has grown to provide services and support across Victoria for children, adolescents and adults with Cystic Fibrosis and their families and carers. At any one time, there are over 600 Victorian families using our services.

Cystic Fibrosis Victoria can be contacted at:
80 Dodds Street
Southbank Vic 3006
Phone: (03) 9686 1811 Toll free: 1800 633 685
Email: admin@cfv.org.au Website: www.cfv.org.au

Cystic Fibrosis Victoria programs and services include:

Support, information and education, advocacy, and fundraising

Recommended reading/viewing:

Websites:

CFV website: www.cfv.org.au

Cystic Fibrosis Worldwide: www.cfww.org

Cystic – L: www.cystic-l.org

CF Care: www.cfcare.com

CF Foundation USA: www.cff.org

CF UK Trust: www.cftrust.org.uk

Boomer Esiason Foundation: www.esiason.org

Videos
‘Speaking from Experience’ Versions 1, 2 & 3: Newly Diagnosed, Adolescents, Adults
Talking About CF 1
Talking About CF 2
Understanding Cystic Fibrosis (2002)

Books
Cystic Fibrosis: Medical Care: Author: D Orenstein et al: Publishers, Lippincott Williams & Wilkins 2000
CFV Handbook (available from Cystic Fibrosis Victoria - see above for contact details)