5/4 Homer Street Moonee Ponds 3039

Further Resources

Organisations, including services and resources available

In 2004 Paediatric Continence Association of Australia (PCAA) was formed to provide information, education and support to families with children with all forms of bowel and bladder dysfunction. PCAA is a registered health promotion charity with ITEC and DGR tax status. The formerly known Nidkids group became an auspiced program under the PCAA to support kids with NID.

PCAA services include:

  • Over 15 volunteer staff (including qualified community development, disability, social work, counselling and nursing practitioners)
  • National office based in Chirnside Park
  • 3 national conferences held at RCH for the medical, allied health and community sectors
  • Formation of Paediatric Continence Advisory Council (medical, allied health, education & community sector representation)
  • Parent education fact sheet series (24) and educational management booklets for Anorectal anomalies and STC
  • Twice yearly (summer & winter) camps for kids with bowel and bladder dysfunction
  • Telephone counselling and extensive website www.pcaa.org.au
  • Parent education sessions across the country
  • School visits, ward visits and parent support at NID clinics
  • Member of international collaboration (12 countries incl USA, UK, NZ, Russia, India) managing children with ARM/ Hirshprung
  • Networks with Human Services child protection, education system, allied health system and extensive community agencies