ACD - Association for Children with a Disability
The Chronic Illness Alliance Community
Directory of Chronic Illness Alliance Members' Web Sites
NB: The links to the members' websites will open up in a new window.
On this page
AIDS Housing Action Group
Arthritis Victoria
Asthma Victoria
Australian Crohns and Colitis Association
Australian Leukodystrophy Support Group Inc.
Bendigo Community Health Services
beyondblue
Brainlink
Cancer Council of Victoria
Cardiomyopathy Association of Australia Ltd.
Carers Victoria
ChIPS
Continence Foundation Australia
Cystic Fibrosis Victoria
DEBRAA Victoria
Diabetes Australia - Victoria
Epilepsy Foundation of Victoria
Epilepsy Australia
Haemophilia Foundation of Victoria
Health Issues Centre
Hepatitis C Council of Victoria
ISIS Primary Care
Kidney Health Australia
Knox Community Health Service
The Leukaemia Foundation
ME/CFS Society of Victoria
Ménière's Support Group of Victoria
Multiple Sclerosis Society of Victoria
Myeloma Victoria Inc.
Palliative Care Victoria
Parkinsons Victoria Inc
PASS
People Living with HIV/AIDS Victoria
Pharmacy Guild of Australia,
Victorian Branch
Positive Women
Prostate Cancer Foundation of Australia
Royal District Nursing Service
Thalassaemia Society of Victoria
Thyroid Australia
The Type 1 Diabetes Network
Victorian Aboriginal Community Controlled Health Organisation
Victorian AIDS Council
AIDS Housing Action Group
Contact: Mark Riley
365 Hoddle Street, Collingwood Victoria, 3066
Telephone: (03) 9517 4311
Fax: (03) 9416 3143
Email: ahag@infoxchange.net.au
Arthritis Victoria operates within a health promotion framework offering programs throughout Victoria in Self Management, Physical Activity Programs (like Warm Water Exercise and Tai Chi) and support to families dealing with juvenile arthritis.
A telephone information service is provided by volunteers.
Contact: Denise Philpott denise@arthritisvic.org.au
Telephone: (03) 85318015
Contact:
491-495 King Street, West Melbourne Victoria, 3003
Telephone: (03) 9326 7088
Fax: (03) 9326 7055
Email: AFV@asthma.org.au
Australian Crohns and Colitis Association
Contact:
National Office: Level 1, 462 Burwood Road, Hawthorn Victoria, 3122
Telephone: (03) 9815 1266
Email: info@acca.net.au
Australian Leukodystrophy Support
Group Inc.
ALDS endeavours to make itself known to the health professional community. Quarterly newsletters are circulated to sufferers, parents of affected children and subscribers. Two social gatherings a year are organised. An executive committee is nominated at the AGM which is held at the beginning of the year. They work tirelessly to raise funds to assist with medical research and families in need of financial support.
Leukodystrophy is a genetic disease of which there are 10 or 11 different types. It affects the myelin sheath of the nerve. One type is x-linked, adrenoleukodystrophy, where the mother is a carrier and males are affected. Lifespan is variable. When the myelin of the brain is affected the child becomes deaf, blind, unable to speak, walk and in many cases eat. Currently there is no cure.
Contact: Julie Thomas, CSB President,
10 Mitchell Street, Mentone Victoria
3194
Telephone: (03) 9584 7070
Fax: (03) 9583 4379
Email: mail@alds.org.au
Bendigo Community Health Services
Bendigo Community Health Services works to strengthen the capacity of individuals and communities to maintain and improve their health and well-being.
Contact: Karen Riley
Bendigo Community Health Service, Seymour Street, Bendigo, Victoria 3556
Telephone: (03) 5434 4300
Fax: (03) 5434 4355
Email: karenriley@bchs.com.au
beyondblue-the national depression initiative
beyondblue is a national independent, not-for-profit organisation working to address issues associated with depression, anxiety and related substance misuse disorders in Australia. A key goal relates to raising community awareness and reducing the stigma of depression.
Contact:
PO Box 6100, Hawthorn East, Victoria 3122
Telephone:(03) 9810 6100
Fax: (03) 9810 6111
Email: bb@beyondblue.org.au
Brainlink Services Ltd is a statewide service that is dedicated to improving the quality of life of people affected by conditions of the brain and providing support to their families.
Contact: Brainlink
54 Railway Road, Blackburn, Victoria 3130
Telephone: (03) 9845 2951
Fax: (03) 9845 2882
Email: sharons@brainlink.org.au
The Cancer Council of Victoria's mission is to lead, coordinate, undertake and evaluate action to minimise the human cost of cancer for all Victorians.
There are over 100 types of cancer and all are caused by damage to certain genes (our DNA) and in over 90% of cases, this damage results from exposure to cancer causing agents during our lifetime.
Contact : Cancer Information and Support Services for information and
support on 13 11 20
Patient Services Development Unit for assistance with development of new
services on (03) 9635 5137
Cardiomyopathy Association of Australia Ltd.
Nationally the Association provides support for people with Cardiomyopathy, their families and friends. This is by regular social and informative meetings in several States, newsletters and a phonelink service.
Contact: Julie Temple
PO BOX 273, Hurstbridge Victoria 3099
1300 362 787 - Heartline
1300 552 622 - CMAA Ltd.'s message bank for state contact details.
Carers Victoria is the statewide voice for family carers. Carers Victoria represents and provides support to carers in the community.
Contact: Kath Waugh
Level 1, 37 Albert Street, Footscray Victoria 3011
Telephone: (03) 9396 9500
Fax: (03) 9396 9555
TTY: (text phone for hearing impaired) 03 9396 9587
Email: library@carersvic.org.au
ChIPS (Chronic Illness Peer Support)
ChIPS is a program or young people with any kind of chronic health condition. It provided support, fun and opportunities to learn new skills in an environment of understanding and acceptance.
Contact: Kristen Kappel
Centre for Adolescent Health
2 Gatehouse Street, Parkville Victoria 3052
Telephone: (03)
9345 6616
Email: kristen.kappel@rch.org.au
Continence Foundation Australia
The Continence Foundation of Australia (CFA) is the peak body for continence promotion, management and advocacy. The Continence Foundation of Australia manages the National Continence Helpline freecall 1800 33 00 66 on behalf of the Australian Government.
The Helpline is a free service that provides confidential information and advice about bladder and bowel problems and continence products and
services.
Contact: Barry Cahill
Chief Executive Officer
Continence Foundation of Australia
AMA House 293 Royal Pde, Parkville Victoria 3052
Telephone: (03) 9347 2522
Facsimile: (03) 9347 2533
Email: barry@continence.org.au
Cystic Fibrosis Victoria offers a range of services for people living with CF, their families, friends and carers. Services include support (including financial assistance and equipment hire), advocacy and lobbying, information, education and fundraising.The Association has also has a Contact & Support Network which operates on a voluntary basis and provides support to people living with and affected by CF across the State.
Cystic Fibrosis (CF) is the most common life threatening genetic disorder in Australia. CF predominantly affects the lungs and digestive system. There is currently no cure, however with improved medication and treatment, life expectancy has been extended consideraby. Approximately 50% of people with CF now live until the age of 30 or beyond.
Contact: Kerryn McIver, Community Relations and Information
Officer
80 Dodds Street SOUTHBANK VIC 3006
Postal: PO Box 3036
SOUTH MELBOURNE VIC 3205
Telephone: (03) 96861811
Freecall within Victoria: 1800 633 685
Fax: (03) 9686 3437
E-Mail: admin@cfv.org.au
Contact: Deb Holmes
28 Warrandyte Road, Ringwood Victoria, 3134
Telephone: (03) 9845 8034
Email: enquiries@debra.org.au
Contact:Susanne Baxandall, Advocacy & Information Officer
570 Elizabeth Street, Melbourne Victoria, 3000
Telephone: (03) 9667 1777
Fax: (03) 9667 1778
Email: mail@dav.org.au
Epilepsy Foundation of Victoria
Contact: Graeme Shears
818 Burke Road, Camberwell Victoria, 3124
Telephone: (03) 9805 9111
Fax: (03) 9882 7159
Epilepsy Australia is a nationally registered charity whose members are state-based organisations, working on behalf of all Australians with epilepsy.
Epilepsy Australia National Helpline:1300 852 853
Haemophilia Foundation of Victoria
HFV is committed to providing physical and emotional support and services for people affected by bleeding disorders, their families and carers in Victoria. The Foundation lobbies and advocates for quality services for members and provides education to the community about bleeding disorders.
Haemophilia is a blood clotting disorder in which one of the essential clotting factors is deficient. Haemophilia A, or Classical Haemophilia,is the most common form, and is due to the deficiency of Factor VIII. Haemophilia B, or Christmas Disease, is due to the deficiency of Factor IX. Von Willebrand's disorder is another common blood clotting disorder.
Contact: Haemophilia Foundation Victoria,
13 Keith Street, Hampton East Victoria 3188
Ph: (03) 9555 7595, Fax: (03) 9555 7375
Email: hfvic@vicnet.net.au
Health Issues Centre is at the forefront of promoting consumer perspectives in the Australian health system. It has gained a strong reputation around Australia for its public interest research and its analysis of the health system, particularly promoting awareness of consumer perspectives and needs.
Contact: Health Issues Centre
Inc.
Level 5, Health
Sciences 2
La Trobe University
VIC 3086
Ph: (03) 9479
5827
Fax (03) 9479
5977
Email: info@healthissuescentre.org.au
Hepatitis C Council of Victoria
The Hepatitis C Council of Victoria Inc. is a statewide organisation representing and catering to the needs of people with hepatitis C, their carers, partners, family and friends.
The Council works to achieve this through support, advocacy, education and consultation.
Our Vision
- That hepatitis C is recognised as a health and social issue requiring
understanding
and appropriate resources - That stigmatisation of and discrimination against people with hepatitis C no longer occurs
- That people affected by hepatitis C receive appropriate and accessible services, support, health and social care in order to maximise their quality of life
- That there are no new hepatitis C infections
Contact: Hepatitis C Council of Victoria
Suite 5, 200 Sydney Road, Brunswick Victoria, 3056
Telephone: (03) 9380 4644
Fax: (03) 9380 4688
Email: info@hepcvic.org.au
ISIS Primary Care is the result of an amalgamation of Brimbank, Westgate and Wyndham community health services, and is the largest provider of community health service in the Western Metropolitan Region. The organization is a unique example of modern primary health care, managing a diverse array of projects from small specialist pilot projects to extensive and sophisticated regional programs. ISIS Primary Care provides community health services in Brimbank, Wyndham and Hobson's Bay local government areas, in partnership with local communities.
Contact: Anne Cox
ISIS Primary Care Inc
PO Box 147, St Albans, Victoria, 3021.
Telephone: (03) 9449 6900
Email: isis@isispc.com.au
Kidney Health Australia
The Australian Kidney Foundation now trading as Kidney Health Australia was founded in 1968. As a non proft organisation, our vision is Australia free of kidney and urinary tract disease. Our mission is to be the lead organisation promoting kidney and urinary tract health through research, advocacy, education and health service excellence.
Kidney Health Australia provides support and education services to patients and their families with kidney disease throughout Australia.
Contact: Health Services Manager
344 St. Kilda Road, Melbourne, Victoria, 3004
Telephone: (03) 9674 4300
Fax: (03) 9686 7289
Email: vic@kidney.org.au
Knox Community Health Service was established in 1996 to provide a high quality of community care and health education programs to Knox consumers. Knox Community Health Service delivers a range of services that improve the physical, mental and social well-being of individuals, families and communities in the City of Knox.
Contact: Belinda Lehane, PA to CEO
1063 Burwood Highway, Ferntree Gully, Victoria 3156
Telephone: (03) 9757 6200
Fax: (03) 9756 0144
Email: belinda.lehane@kchs.org.au
The Leukaemia Foundation began operations in Victoria in 1999 and since then has been supporting patients and their families through the provision of vital services including counselling, accomodation, transport, education, financial assistance, medical facilities and equipment, research and advocacy. These services extend to patients in metropolitan Melbourne, regional Victoria and Tasmania.
In addition to this, the Foundation is constantly striving to raise funds for research towards better treatments and ultimately a cure for leukaemia and related blood disorders.
The Foundation's vision is to create a world free of leukaemia and its mission is to care for patients and their families.
Contact: Samantha Schembri
Manager-Support Services
The Leukaemia Foundation
44 Ellingworth Parade, Box Hill, Victoria, 3128
Telephone: (03) 9949 5800
Fax: (03) 9890 8753
Email: sschembri@leukaemia.org.au
Contact: Penny Abrahams
23 Livingstone Close, Burwood Victoria, 3125
Telephone: (03) 9888 8991
Fax: (03) 9888 8981
Email: admin@mecfs-vic.org.au
Ménière's Support Group of Victoria
Contact: Lynn Polson
Meniere's Support Group Victoria
Suite 4, 18-28 Skye Road, Frankston Victoria, 3199
Telephone: (03) 9783 9233
Fax: (03) 9783 9206
Email: info@menieres.org.au
Multiple Sclerosis Society of Victoria
Contact: MS Society of Victoria
54 Railway Road, Blackburn Victoria, 3130
Telephone: (03) 9845 2700
Fax: (03) 9845 2777
Email: public@mssociety.com.au
Myeloma Victoria provides education, information and support to patients,
relatives, carers and health professionals by conducting educational
workshops in relevant topics and publishing a regular newsletter.
We also employ a part time Myeloma Support Nurse who provides phone support
to those families affected by Multiple Myeloma.
Contact: Irene Beattie, Secretary
P O Box 2014, Mt Waverley, Victoria 3149
Telephone: (03) 9807 9841
Email: fredo@micronica.com.au
Contact:
Level 2, 182 Victoria Parade, East Melbourne Victoria, 3002
Telephone: (03) 9662 9664
Fax: (03) 9662 9722
Email: info@pallcarevic.asn.au
In Australia 100 people are told they have Parkinson's every week of the year. On the day you are reading this, fifteen more people are diagnosed. That's over 5,400 each year, and numbers will double in thirty years.
Parkinson's Victoria is the peak state body providing information, advocacy, education and referral services to the 20,000 people living with Parkinson's, their families and carers.
Contact:
Parkinson's Victoria Inc.
20 Kingston Road, Cheltenham, Victoria, 3192
Telephone: (03) 9551 1122
Fax: (03) 9551 1310
Email: info@parkinsons-vic.org.au
Contact: Julia Fry
59 Sydney Parade, Geelong Victoria, 3220
Telephone: (03) 5229 1574
Email: passprogram@barwonhealth.org.au
People Living with HIV/AIDS Victoria
Information, advice, advocacy, support and representation for all people living with HIV/AIDS in Victoria.
Contact: Sonny Williams
6 Claremont Street, South Yarra, Victoria, 3141
Telephone: (03) 9865 6772
Email: info@plwhavictoria.org.au
Pharmacy Guild of Australia Victorian Branch
The Pharmacy Guild of Australia was established in 1928, bringing together several small retail pharmacy organisations then operating in the various states. The Guild is registered under the Federal Workplace Relations Act 1996 as an employers' organisation. Its members are owners of some 4,500 pharmacies throughout Australia.
Contact: Pharmacy Guild of
Australia, Victorian Branch
40 Burwood Rd
Hawthorn, Victoria
3122
Telephone: (03)
9810 9999
Fax: (03) 9818
8627
Email: maurice.sheehan@vic.guild.org.au
An organisation supporting women living with HIV/AIDS.
Contact: Stephanie Moore - Director
Telephone: (03) 92766918
Email: info@positivewomen.org.au
Prostate Cancer Foundation of Australia
Prostate Cancer Foundation of Australia is the peak organisation for prostate cancer. Our mission is to reduce the impact of prostate cancer on Australian men, their partners and families. we do this by raising awareness and education in the community, funding quality research and supporting men through the 84 local community PCFA support groups.
Contact: A. Giles, CEO
Telephone: (02) 9438 7000
Email: agiles@prostate.org.au
Royal District Nursing Service
Contact: Fiona Hearn
31 Alma Road, St. Kilda Victoria, 3182
Telephone: (03) 9536 5222
Fax: (03) 9536 5333
Email: fhearn@rdns.com.au
Thalassaemia Society of Victoria
Contact: Sandra van Lith
333 Waverley Road, Mount Waverley Victoria, 3149
Telephone: (03) 9888 2211
Fax: (03) 9888 2150
Email: info@tsv.org.au
Support for those with thyroid conditions, their families and friends.
Contact: Duty Volunteer
333 Waverley Road, Mt. Waverley, Victoria, 3149
Telephone: (03) 9888 2588
Fax: (03) 9561 4798
Email: support@thyroid.org.au
The Type 1 Diabetes Network is a consumer group run for and by people with type 1 (autoimmune) diabetes. Activities include online communities for young adults: www.realitycheck.org.au and parents www.MuntedPancreas.com. There are also educational resources, notices of networking events and research into the experiences and the health services use by people with type 1 diabetes.
Contact: Kate Gilbert
Telephone: 04 02 515 825
Email: kate@d1.org.au
Victorian Aboriginal Community Controlled Health Organisation (VACCHO)
VACCHO represents all Aboriginal community controlled health organisations in Victoria and is a key partner in the Aboriginal Health Promotion and Chronic Care (AHPACC) strategy.
Contact:
VACCHO
5-7 Smith Street, Fitzroy, Victoria, 3065
Telephone: (03) 9419 3350
Fax: (03) 9417 3871
Email: jenniferb@vaccho.com.au
Contact: Mike Kennedy
6 Claremont Street, South Yarra Victoria, 3141
Telephone: (03) 9865 6700
Email: mike_kennedy@vicaids.asn.au
